Dear readers,
The Dr. Pheo's blog has been running for 8 months. Since the very beginning, readers have been giving me very positive feedbacks. Up to now, the blog has covered almost all aspects of pheo and I hope that patients and families benefit from reading these posts.
As the holiday season is approaching, I want to take this opportunity to wish all patients, their families and friends, and all those interested in this disease a very happy holiday season.
Dr. Pheo
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I am very thankful for you, for taking the time to answer our questions, no matter how small or complicated, and for supporting us when support is so hard to find. Have a very happy Thanksgiving!
ReplyDeleteI'm also thankful for the support and patience that I see Dr. Pheo provide to everyone. And, I'm thankful to be having my first diabetes-free Thanksgiving now that the pheo that was causing it is gone!
ReplyDeleteI learn something new everyday. How did the pheo cause diabetes? Merry Christmas Dr. Pheo!!
ReplyDeleteCatecholamines (secreted by pheo) counteract insulin action. The diabetes caused by pheo thus is like type 2 diabetes--due to resistance to insulin.
ReplyDeleteDr. Pheo
Hi Dr Pheo, hope you enjoyed Thanksgiving.
ReplyDeleteI have been trying to find non-genetic malignant pheo people for nearly 2 yrs now, without success. I know it is very rare but stats suggest 60 people a year in the UK receive this diagnosis, even if half of them are diagnosed post mortem (I am guessing) then surely some people must survive, if only for a few yrs. Have you met any non genetic malignant pheo patients? Our consultant has only had one other similar patient in 20 yrs. In order to reapply for funding for Sutent we need to state why my husband would benefit compared to other similar patients, but we cant find any similar patients! Please don't be frightened to be honest, we know the Sutent may only be prolonging the inevitable. Regards Jane
Dear Jane,
ReplyDeleteI had only one similar patient in the past who had metastatic pheo but without family history.
Dr. Pheo
Hi - I am sorry, I am new to this blog and may have made a mistake.
ReplyDeleteAre we meant to post questions only under the most recent topic? Or under the most applicable topic?
I had guessed the applicable topic, and did ask questions under both the Pheo tests in the real world, and pheo imaging section.
I'll try to make sure to put any questions in the right place from now on.
And of course - Happy Holidays.
Dear T,
ReplyDeleteI answered your other two questions under the respective posts. In the future, please post questions or comments under the most recent post. It will be much easier for me to find the questions. Thanks for asking.
Dr. Pheo
On Dec 3, Jane Richards said that she couldn't find any other non-genetic malignant pheo patients.
ReplyDeleteI am assuming by "malignant" you mean metastatic. I have had a pulmonary metastasis. I have had extensive genetic testing, but thus far no genetic defect has been found. My siblings and cousins have not had any paragangliomas, although I suspect my grandmother and her two sister's pancreatic cancer (in the 1950's and 1960's) may have been related to my paragangliomas.
No new tumors have been located in the last 2 years since my lung metastasis was removed.
Eve I would be very keen to chat with you, if you click on my name it will take you to my blog and there is an email link on the profile page regards Jane x
ReplyDeleteHappy Holidays,
ReplyDeleteIslandbound
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