I am compiling a list of doctors and medical centers that are experienced in pheo. I hope readers will share their PERSONAL experience with their own doctors and medical centers that they feel do a great job with pheo. Please indicate only the doctor's name and state, and the medical center's name. No other information please. I don't want any physician ad here at all.
I would ask you to only list a doctor who actually diagnosed or treated you. Name the doctor or center as comments to this post. Please only list if you are a pheo patient yourself. I hope we can come up with an accurate list of good pheo doctors voted by patients.
I may or may not list the doctors or centers in my own list, depending on the investigative work I will do to check. I have my own angle: from a fellow physician.
Dr. Pheo
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Dr. William F. Young
ReplyDeleteEndocrinologist
Mayo Clinic
Rochester, Minnesota
He is the best doctor, by far, I've ever met. He teaches very well, answers all questions, understands the patient's point of view, and really really is an expert on pheos. He also know many other contacts within the Mayo, and can set up an "all-star" team of doctors (as I like to put it.)
*Recently had a 2.8 cm pheo removed (left adrenalectomy) at the Mayo Clinic at Rochester,MN. They appointed me with Dr. Irina Bancos- endocrinologist (she and Dr. Young see the pheo cases). My surgeon was Dr. Travis McKenzie (he has done many pheo surgeries--over 70). They are both superb and I highly recommend.
DeleteI am 41y/o and my symptoms started mildly 6 yrs ago with heart palpitations and resting hand tremor. Gradually other symptoms included face pallor, tingling tongue, sometimes mild headache or back spasms. At times I did feel flush but never had any profuse sweating. I would always know when these spells would come as my chest would feel vacant first before the heart palpitations started. The spells always self-resolved and I just lived with them, thinking it was my sugar level, something I ate or I was anxious etc. They would occur anywhere from 0-5x per month--randomly at any time during day. I kept track of spells but didn't notice a trigger or pattern. I saw a cardiologist at one point and they did not find any heart abnormalities. The next recommendation was to see a neurologist. I also went thru my 3rd pregnancy 3 yrs ago with the spells and somehow probably had spikes in BP that went undetected. Again my spells/symptoms were tolerable so I lived with them for another 3 yrs after the pregnancy, unaware BP was high during those spells. Life was busy with three kids/job and since the spells were tolerable I procrastinated finding out why I was having these spells.....until I had one severe spell that sent me to the ER. Woke up middle of night with severe heart palpitation and severe bilateral pounding headache that debilitated me. This time the spell recurred and did not relent. Luckily the ER dr suspected pheo and did a 24 urine test. My results were 5-6x high. Subsequent plasma and CT scan confirmed diagnosis. My tumor was well circumscribed within the medulla. They did not find any other paras and genetic testing was negative.
In hindsight I should have taken better care of myself and pursued answers sooner because who knows what could have happened from the most severe spell with high BP-- stroke/heart attack. I consider myself very lucky. My outcome and prognosis have been favorable. I know it's not always the case for others and I pray and hope the best for those going thru a similar experience.
I also deleted the comment with the link to a list of doctors, as it had contact info and such on it. Sorry. ^.^
ReplyDeletehi...
ReplyDeleteI read the earlier blogs. I am a patient of pheo. There is no history of pheochromocytoma in my family. Neither of my parents have\had it. The doctors cannot explain the reason why I have it. Should my sibling get her tests done? Although she does not have any health problems.
Kindly suggest.
Thanks
I had commented that I think the NIH with Dr.Pacak is the best. Where did this comment go?
ReplyDeleteYou commented under a previous post.
ReplyDeleteDear Mansi,
ReplyDeleteHow old were you when you were found to have a pheo? Was it in the adrenal gland or retroperitoneum? Was it bilateral? Was there any metastasis?
Asssuming you were younger than 50 and had adrenal pheo at one side only, you should do genetic testing. If a mutation is found, your sister should test for this mutation. If you don't want to do genetic testing, the risk that your sister has a pheo varies a lot depending on the cause of your pheo. The risk ranges from 5/10,000,000 to 50%.
A reasonable approach is to start testing your sister yearly when she is at your age, or whenever she has symptoms of pheo. If she is of an anxious type, she can test now.
Dr. Pheo
Hi Dr Pheo
ReplyDeleteI have been unwell for awhile. recently came over feeling faint went very pale paramedics called and classed as panic attack. went to gp and had liitle air intake in left lung.
off to hospital. calcified empyema diagnosed.sent home still feeling awful.palpitations high bp sweating feeling anxious not right. went back to GP and more bloods taken he mentioned 24 hr urine sample.
he wants to check for cathes .these episodes of feeling faint happening 4 times a day at this moment in time heart at 120 and bp at 180 over 115. i am so exhausted. found your blog and will keep updated
Dear Martin,
ReplyDeleteI'd like to suggest checking metanephrines in the blood or urine. Catecholamines are not very good in your case. Let me know the results.
Dr. Pheo
Have you encountered PGLs with recurrent depression of blood counts (yesterday: WBC 0.7, Hemo. 76, Platelets 9)? Could this be a PGL artifact or is it more likely MDS or some other problem compounding my issues? Is there a known association between MDS and PGL, or any of the treatments I've had?
ReplyDeleteI have Functioning Paraganglioma (SDHB c.590C>G). First tumour removed 2000; First symptoms in 7/04; diagnosed 1/06. Tumours on C6/7, L5/S1, skull + many other bones and two abdominal lesions. Treatment w/ radiotherapy (X 6 sets) and MIBG (Edmonton X 8). Sunitinib (Tyrosine Kinase Inhibitor) since January '09, at BCCA in Vancouver. More details at http://viewcourt.vcn.bc.ca/peter
Thanks, Peter
ps. I could give you a bunch of Canadian doctor names if you want.
Dr. John Godine, Massachusetts General Hospital
ReplyDeleteDr. Lianna Billings, Massachusetts General Hospital
hi Dr pheo
ReplyDeleteMy bloods come back ok apart from protein is hi.he will not commit to a 24hr until he has spoken with the hospital.
he seems uninterested. still have high bp h/r just below 100
regards
martin
I was diagnosed with malignant paraganlioma 4 years ago with a primary tumor adjacent to my bladder. 2 years later I got a tumor at C-2. I had 75% of C-2 removed with a C-1 to C-4 fusion and a titanium cage grated into my spine. 5 months ago a PET scan showed at least 7 more tumors in my spine, neck and lungs. My oncologist started me on Sutent. After 2 cycles, the tumors showed 30-50% reduction in size. And then I got a sore throat. One day 2 months ago I looked in my throat saw a hole the size of my fingernail. I could see the metal from the titanium cage in my spine. The first surgery the doctors tried to stitch it shut, but that didn't work. This month I had a uvula advancement. After that, a small defect (hole) showed up a week later. Next week I go in for the 2nd part of the advancement and to try to stitch the defect shut. None of the doctors had ever seen this before. It was determined that the cage had not moved and was not the cause of the hole. We're thinking the side effects of the Sutent may have something to with the tissue being so weak, since the worst side effect of Sutent is mouth and throat soreness. Any comments?
ReplyDeleteDear Pam,
ReplyDeleteI personally don't have experience on Sutent. I do agree that the titanium cage and Sutent together may cause the problems. I suggest that you and your doctor write to FDA to report your experience.
Dr. Pheo
Dear Peter,
ReplyDeleteI am not aware of any link between paraganglioma and myelodysplasia syndrome. The radiotherapy you have received, however, indeed can cause bone marrow suppression. I suggest that you ask the doctors who gave you the radiotherapies about your hematological problems.
Dr. Pheo
Dear Martin,
ReplyDeleteIf the blood test was metanephrines and the result was normal, then the chance that you have pheo is not high. If your symptoms persist or get worse, the doctor may retest.
Dr. Pheo
This comment has been removed by the author.
ReplyDeleteThis comment has been removed by the author.
ReplyDeleteWe receive excellent care at the Royal Hallamshire Hospital, Sheffield, Yorkshire, UK. Dr J Newell-Price (Endocrinology); Mr Barney J Harrison (Surgeon) and also Dr John Wadsley (Oncology)at Weston Park Hospital, Sheffield, Yorkshire, UK.
ReplyDeleteMy husband, Ian's initial diagnosis of malignant phaeochromocytoma was received at Chesterfield Royal Hospital, Derbyshire, UK by Dr Robinson, or possibly his colleague Sarah-Jane (I forget her surname) who had the foresight to request less common urine & blood tests & multiple scans and was therefore able to provided an accurate (devastating) diagnosis within a week.
As I am sure you are aware, UK citizens don't pay directly for health services so the services provided can be severely under-funded and lacking resources. We consider ourselves very fortunate to have received informative, honest and compassionate advice & care since Ian's initial collapse.
Dear Jane,
ReplyDeleteThank you for sharing. I wish Ian the best.
Dr. Pheo
Hi Dr Pheo
ReplyDeleteI am in the middle of the 24 hr urine test.
as i said previously said my bloods came back ok not tested for mets.
my albumin and globulin was high. what does this mean if anything
regards
martin
Dennis here with names: The following are excellent doctors very familiar with pheos:
ReplyDeletePaul Fitzgerald @ UCSF
Camilo Jimenez @ MDACC
and I have recently received surgery from this highly skilled surgeon:
Reza Mehran @ MDACC
If you will allow I would appreciate perhaps one on one email communication about pheos and my experience. What do you think?
Dear Dennis,
ReplyDeleteThank you for the doctor names. At the current stage, I would not communicate with readers one-on-one due to multiple reasons. I am sorry for that.
Dr. Pheo
Dear Martin,
ReplyDeleteTell me the exact values of albumin, globulin, BUN, creatinine, sodium (Na), and chloride (Cl).
Dr. Pheo
Hi Dear Pheo
ReplyDeleteAlbumin 54 g/l
Globulin 33 g/l
BUN not taken
Creatinine 90 umol
Sodium (Na) 143 mmol
Cholride (Cl) not tested
I will let you know the urine test when it is back.
Regards
Martin
Dear Martin,
ReplyDeleteThe albumin and globulin are either at upper limit of normal or slightly elevated. It can be as simple as dehydration or can be early signs of disease. I suggest you retest the proteins on a day you are well-hydrated. If they are still somewhat elevated, you should discuss with your doctor further.
Dr. Pheo
Thanks Dr Pheo but my heart sinks when Doctors just wish us well....
ReplyDeleteIan is considering chemotherapy (MIBG 123 (x2) and an Octreotide test scan showed no uptake of the isotope so it is not suitable to use as treatment)
We have an oncology appt on 11th May but we are concerned that if Ian only has months left to live we would rather have some quality of life than risk making him very poorly for him to die anyway. (He is just 40 yrs old, diagnosed in January 2008 after malignant hypertension nearly killed him and had a 500g phaeo removed along with his L Adrenal gland in Feb 2008.
We have heard Dr Ashley Grossman mentioned in other websites/ research papers etc., Do you think it would be worth asking for a second opinion from him? Ian has multiple phaeos in his lungs which have increased slightly in 6 months. Any advice/ comment appreciated and apologies if this is the wrong place to post this - I am a bit rubbish with this technology! Regards Jane Richards
For Jane Richards - Sutent (sunitinib) has been successful in a lot of pheo patients, and I urge her to talk to her oncologist about it. The side effects are much less than CVD chemo and they will know if the drug is working within two months. There are a few articles out there, so please do the research before giving up.
ReplyDeleteDear Jane,
ReplyDeleteIan certainly will benefit from a second opinion. I personally know Dr. Grossman and he is a great expert on pheo. The prognosis of metastatic pheo is very variable and I have patients living years after metastasis is identified. Although Ian has a serious disease, he does not necessarily only has a few months to live.
I won't recommend any specific regimen. Sutent, as suggested by Pam, has been used in patients with metastatic pheo with good results. The most important question you need to ask Dr. Grossman is: is Ian's metastatic pheo an aggressive form, a moderate form, or a slowly-progressing form?
Dr. Pheo
This comment has been removed by the author.
ReplyDeleteI have had one pheo/para removed in 06 from near my spine and 3 removed in 09 from the same area. I have several small tumors that were not removed. I am currently on a once a month shot of Sandostatin. My Dr. is on your list but have been thinking about a second opinion from Dr. at Mayo. I have been waiting since my March surgery to have additional treatment. My Dr. wants to put me in the Azedra study at the Univ. of Iowa. Just anxious to get treatment and frustrated with the wait. I've been reading a lot about different treatments and I am confused by all the information. Since I saw my Dr. on your list I am more confidant in his expertise, but would you recommend a second opinion?
ReplyDeleteDr. Rajiv Roy- San Diego, Sharp Rees-Stealy Medical- Endocrinologist
ReplyDeleteDr. Allan Gamagami-San Diego, Sharp Rees-Stealy-General Surgeon
This is a great site! Thank you so much. Why is Chicago not mentioned?!!
ReplyDeleteI have a pheo on my left adrenal only (just under 4 cm). I am 48 yrs old. According to your advice above, I should have the genetic testing? I had asked about it when pheo was first discovered in July but it was sort of brushed off. Should I insist? I do worry for my siblings and moreso my sister"s kids.
I am also really worried that they have not had me meet with an anesthesioligist. I had my pre-op last week with a PA only (even though surgeon had ordered it for anesthesiologist). When I questioned this, PA said I was young abd healthy (pooh-poohed me). No one has explained the anaesthesia perspective / procedure to me! Shouldn't that be covered thoroughly with the patient?!
Although I like my surgeon and trust his ability, this is eroding my confidence! I feel like I am slipping thru the cracks and not being taken seriously (because I guess I seem so "healthy").
I am *this* close to switching hospitals because of lack of teamwork and lackadaisical attitude gy staff at my current hospital.
However, this is been dragged on so long I worry it would be a bad idea to stretch it out any further. I've been on phenoxy for about 6 weeks already now
My surgery is in 1.5 weeks. I am triating phenoxy
and up to 90 mg/day but my bp ( which was normal to begin with) is not dropping. in fact, if anything it's been getting higher!
Please advise. I do not want to die on the operating table. Thank you.
Laura
Dear Laura,
DeleteChicago does not have a pheo specialist.
It will be ideal that you see a geneticist and do some genetic tests. You can do those after the operation.
You don't have to see an anesthesiologist per se before the operation but the anesthesia team has to be prepared.
The phenoxybenzamine dose is appropriate for you. You need it even if your blood pressure is normal to begin with.
I suggest that you express your concerns to your endocrinologist and surgeon. With the preoperative preparation you have now, it is very unlikely that you will die during the operation.
Dr. Pheo
Thank you. I did not see this until now. I don't know how to get alerts if I get a response on this blog. I did not die! I am alive. But - I don't feel that great, now 6 months post-operatively.
DeleteHow do I get genetic tests? Why don't they do this automatically? How can I make a case for getting tested genetically and where can I have it done? What are the benefits of genetic testing? Why should I do it other than alert my family (I don't have kids so maybe they don't think it matters for me??)
When I say I don't feel that great - well, I often feel very much like I got hit by a truck and am getting migraines again, I have stabbing pains in my feet at times, I think my electrolytes are out of balance, not able to sleep again, my face is orange like an oompah-loompah again, and I'm starting to get muscle cramps and neck pain. I can't help but wonder if I am developing Addisons (or had it all along). I have dark patches on my cheeks just under my cheekbones. I also wonder if I have a tumor on my pituitary which started the whole damn thing perhaps, or what going on concurrently with the pheo. I think this because starting 2 years ago I started having some galactorrhea from my breasts during sex. My prolactin levels were high post surgery (and my Chromagranin A by the way was at 5 per LabCorp post surgery, but then with 2nd testing a few months later had dropped a bit). My prolactin levels came down with the 2nd test. Maybe it was stress that had them up post-surgery? But - it is not normal to have milky discharge from the breasts when you are not lactating, right?
At the same time they found the pheo (incidentally during a scan of my abdomen after I thought I had a gallbladder attack - not that I had a history of gallbladder but I had pain and my grandmother did have gallbladder issues), they found nodes on my thryoid. Biopsied and benign. Isn't there a connection here? I feel something crucial is being missed. I feel like my whole endocrine system is messed up now and my endocriniologist is just happy that the pheo was removed and my life was saved and is wiping his hands of me, thinks I'm a hypochondriacal perimenopausal woman. So what - do I have to enter into a full crisis of some sort to be taken seriously and just feel worse and worse (esp in the summer)and just live with my life terribly disrupted by not feeling well??? I am very frustrated. AT this point, I feel I made a grave error and should have gone to the Mayo Clinic where I am sure they do many many pheos and I would have had genetic testing and would have had laparoscopic surgery most likely instead of a giant gash of a scar to contend with and a doctor who thinks I'm just a complainer.
Dear Laura,
DeleteAll your questions are legitimate and important. They are, however, too complicated to be discussed at this blog. Again the best approach is to see a knowledgeable doctor and discuss with her/him directly.
Dr. Yu
Okay. Thanks. I hope I find one.
DeleteLaura
Dr. Michael Yeh - Los Angeles - Director, Endocrine Surgery Program at UCLA.
ReplyDeleteAre there any doctors you recommend in the Dallas area?
ReplyDeleteDear Vicki,
ReplyDeleteYou can try doctors at UT Southwestern.
Dr. Pheo
Thank you.
ReplyDeleteI'm just learning about pheos and the possibility of having one. For me it's definitely a case of not knowing what I don't know. That being said, I have a few questions.
1. I was diagnosed with Adult Onset Growth Hormone Deficiency in 2011. Since then I've been taking daily Humatrope injections. Do you know of any correlation between pheos and AGHD?
2. Also in 2011 I noticed a mass on my collarbone, close to my neck. Endo said it was a lipoma - not to worry about it. When I began experiencing "episodes" this year, including hypertension spikes, I noticed the lipoma was getting larger. Any chance it could be a paraganglioma?
3. Also this year, I've had some odd neurological episodes - dystonia / mini-seizure events. Any chance those could be related to a pheo?
BTW - I've had more than one physician tell me I need to be evaluated by Dr. House. That would be kind of funny except it appears to be true.
thanks for your time.
vicki
Dear Vicki,
ReplyDeleteTo diagnose whether you have pheo is quite straightforward: just test your plasma metanephrines. If the levels are normal, you unlikely have pheo.
Dr. Pheo
I am currently diagnosed with pheo on my right adrenal. Do you know any experienced surgeon in San Francisco or San Jose area? I am currently seeing a surgeon in Stanford Medical Center and surgery may be scheduled in few weeks.
ReplyDeleteDear Vishnu,
DeleteDr. Quan-Yang Duh at UCSF is an expert surgeon on pheo.
Dr. Pheo
My husband has all the symptoms of Pheo (profuse, constant sweating, high BP, anxiety, pale skin, cold sweats, etc). The first urine collection done a year ago showed nothing, but the endo tried him on Dibenzyline which worked almost immediately. About 7-8 months ago he came off the Dibenzyline and all symptoms remained at bay. Then, little by little, the symptoms began returning, with a full blown episode about 2 weeks ago. After 2 days of constant symptoms he began the meds again, which helped, but not as well as before. We just had the urine collection done again & results, again, came back as normal. I have a couple of questions however - this time the lab lady told us to not refrigerate it as it had an acid in it, so we didn't. Then after some research I see that it IS supposed to be refrigerated even with the acid. Another concern is, the Dibenzyline was still in his system. Could either of these have tainted the results? We are at our wits end with this. The Dibenzaline causes him to be so sleepy all the time. Please help & thank you.
ReplyDeleteDear Judie,
DeleteNot refrigerating is not a big problem although refrigerating is always better. Dibenzyline may make the catecholamine levels a bit higher. Your husband unlikely have pheo.
Dr. Pheo
Can you give me the name of a great endocrinologist in N.C.?
ReplyDeleteDear Lisa,
DeleteI don't know a specific doctor but the endocrinologists at Duke and UNC Chapel Hill should have sufficient experience in pheo.
Dr. Pheo
Hello,
ReplyDeleteI am hoping someone can recommend and Endocrinologist/surgeon in the San Francisco Bay area, perhaps at UCSF.
My family doctor has ordered tests but admits he is not qualified in the diagnosis.
THANKS for any reply.
Dear Boren,
DeleteDr. Paul Fitzgerald is a wonderful pheo specialist there.
Dr Pheo
Thank you. He was mentioned to me by another, yesterday. I will see if I can get a consultation.
DeleteThank you again,
Dwain Goforth (Boren Bega)
This comment has been removed by the author.
ReplyDelete*Recently had a 2.8 cm pheo removed (left adrenalectomy) at the Mayo Clinic at Rochester,MN. They appointed me with Dr. Irina Bancos- endocrinologist (she and Dr. Young see the pheo cases). My surgeon was Dr. Travis McKenzie (he has done many pheo surgeries--over 70). They are both superb and I highly recommend.
ReplyDeleteI am 41y/o and my symptoms started mildly 6 yrs ago with heart palpitations and resting hand tremor. Gradually other symptoms included face pallor, tingling tongue, sometimes mild headache or back spasms. At times I did feel flush but never had any profuse sweating. I would always know when these spells would come as my chest would feel vacant first before the heart palpitations started. The spells always self-resolved and I just lived with them, thinking it was my sugar level, something I ate or I was anxious etc. They would occur anywhere from 0-5x per month--randomly at any time during day. I kept track of spells but didn't notice a trigger or pattern. I saw a cardiologist at one point and they did not find any heart abnormalities. The next recommendation was to see a neurologist. I also went thru my 3rd pregnancy 3 yrs ago with the spells and somehow probably had spikes in BP that went undetected. Again my spells/symptoms were tolerable so I lived with them for another 3 yrs after the pregnancy, unaware BP was high during those spells. Life was busy with three kids/job and since the spells were tolerable I procrastinated finding out why I was having these spells.....until I had one severe spell that sent me to the ER. Woke up middle of night with severe heart palpitation and severe bilateral pounding headache that debilitated me. This time the spell recurred and did not relent. Luckily the ER dr suspected pheo and did a 24 urine test. My results were 5-6x high. Subsequent plasma and CT scan confirmed diagnosis. My tumor was well circumscribed within the medulla. They did not find any other paras and genetic testing was negative.
In hindsight I should have taken better care of myself and pursued answers sooner because who knows what could have happened from the most severe spell with high BP-- stroke/heart attack. I consider myself very lucky. My outcome and prognosis have been favorable. I know it's not always the case for others and I pray and hope the best for those going thru a similar experience.
This comment has been removed by the author.
ReplyDeleteI don't know a particular pheo specialist in NYC. Cornell should be a great start.
DeleteDr. Pheo
Hello, I am currently undergoing extensive testing for a pheo in Florida. I have decided to go to NYC if surgery is recommended. In researching I discovered Columbia Presbyterian seems to have a great deal on the website re pheos. I intend to call them tomorrow for more info. I would appreciate hearing any results from your search. Thank you, Estelle S.
DeleteDr Pheo,
ReplyDeleteCan you give me a specific endo at UT Southwestern in Dallas, TX please?
Dear Sherry,
ReplyDeleteI am not aware of a specific pheo specialist. That university has a strong endocrine division, though. I am sure you will find a doctor with experience in pheo there.
Dr Pheo
Please see my post below
Delete
DeleteUnknownDecember 6, 2016 at 7:26 PM
I am seeing docs at utsw they do not seem to have a clue I have had 3 24hr urine test when I mentioned pheo they acted like I was speaking a foreign language I have a 15 mm nodule left adrenal dopamine levels 450,517,761 norepinephrine 165,197,276 normetanephrines 1091,1191,1477 my blood sugars are wildly high in 300s I need any advice you can offer
I am seeing docs at utsw they do not seem to have a clue I have had 3 24hr urine test when I mentioned pheo they acted like I was speaking a foreign language I have a 15 mm nodule left adrenal dopamine levels 450,517,761 norepinephrine 165,197,276 normetanephrines 1091,1191,1477 my blood sugars are wildly high in 300s I need any advice you can offer
ReplyDeleteDear Unknown,
DeleteAlternatively you can try MD Anderson. Dr. Camilo Jimenez is a specialist in pheo.
Dr. Pheo
Dr Pheo, I believe Dr Grossman has retired, do you know of another great Pheo doc in London .. or even better Dublin .. ?
ReplyDeleteDear Anonymous,
DeleteI believe that Dr. Grossman is now in Oxford.
Dr. Pheo
Dear Dr, Pheo,
ReplyDeleteThank you for this space of information. I read almost your entire blog and it helped me understand what I was going through. I don't know if this information will be useful to anyone, but I wanted to share it because my surgeon literally saved my life.
I've been living in Bangalore, India for 3 years as a Foreign Language teacher. I was diagnosed with Pheo last April, 2017 by Dr. D.M. Mahesh, an endocrinologist at Columbia-Asia Hospital (Hebbal). He referred me to my surgeon Dr. Rao, which information I am sharing below. My surgery happened last May 4th and it was a complete success. It was so complicated (my tumor was an extra-adrenal, attached to my aorta) that I made arrangements for my funeral pre-surgery. Laparoscopy was not an option, so I was open.
I want to share this information, because I understand there are not many experts on this illness in the USA and, sad to say, it could be more affordable to come to India to have your surgery than going in debt at home.
I highly recommend doctor Rao. He operates on people from all over the world here in Bangalore and he is an authority on Pheo. I am recovering fine and if anyone wants to hear my experience, I won't mind sharing it, because it's a miracle from the way it was diagnosed to this very moment as I type this message.
Here's my doctor's information:
Dr. P.S. Venkatesh Rao, (MBBS, MS, DNB, FRCS, FACS)
Office: +91 80-23439768
Cell: +91 9845061355
www.hitechsurgery.com
drpsvrao@gmail.com
Kadri Clinic (5-7)pm
2186, "D" Blk, 16th "E" Cross, Sahakara Nagara, Bangalore – 560092
Thank you for your helpful blog.
Sincerely,
Silvia Marcela Moreno Tilton
Dear Silvia,
DeleteThank you for sharing the information of this great doctor.
Dr. Pheo
Dr. Pheo. I need to get a good Dr. In Birmingham al. My primary believes I may have pheochromocytoma. I am waiting now on the urine test to come back from labs. I have every symptom that fits the criteria for this. Please help me with a endocrinologist in Alabama that can deal with this.
ReplyDeleteDear Unknown,
ReplyDeleteYou can try Univ Alabama Birmingham school of medicine. It should have doctors with experience on pheo.
Dr. Pheo
I had a pheo removed in 2018 by Dr. Sanziana Roman at Duke Hospital in Durham, NC.(She is now at UCSF) The entire team was amazing starting with my endocrinologist Dr. Lauren Gratien. I had no primary symptoms and it was found incidentally. I'm a new person because of this. What had been "normal" for me was not normal at all. I only wish it had been found a lot sooner.
ReplyDelete